According to my horoscope / stars by Yasmin Boland in yesterday’s Sunday Telegraph my new mantra as a Virgo is:
“My life is on a restart and I feel better everyday”
And I couldn’t agree more.
I can’t believe it has been so long since my last post. I guess my platelets haven’t been such a big issue, though I was still having weekly blood tests up until about a month ago. Then down to fortnightly and now I have three weeks since my last to my next visit to Jenny my haematologist.
Two weeks ago my platelets were 293 – just 7 off me having to buy drinks for the entire team at HACU. Worth every cent. They (as I have said many times before) amazing!
My lowest platelet count was 7. My highest 293.
I have still not had any aspartame or other artificial sweeteners and nor do I intend to. It is simply not worth the risk. I cannot say categorically that giving up diet soft drink is the reason that my platelets started to go up, but nor can I say that it isn’t the reason. I don’t want to go through that hell ever again so I have no intention of ever having diet products again.
It is tricky though – when I order a coke I am frequently given a diet coke and this is completely understandable as I am around 20 kilograms overweight so one would assume that I should be drinking diet products not the full strength 11 cubes of sugar in every can soft drinks. I have to make it clear that I have a deadly allergy to aspartame – which I believe I might have.
No proof of this of course. I just gave up my 3 or 4 cans of Pepsi Max each day at around the same time that my platelets started to go up. I must emphasise that I had also had the following treatments for my ITP (Immune Thrombocytopenia / Low Platelets):
- 90mgs of prednisone daily
- Rituximab / Mabthera
- Treatment for Helicobacter Pylori
- Octagam / IVIG – Intravenous Immunoglobulin
So it could well have been any one of the above or a natural remission but like I said I won’t be touching aspartame (or any artificial sweetener ever again).
Current daily medications:
- Prednisone 10mgs
- Dapsone 50mgs on alternate days
- Folic 5 mgs
- Warfarin – usual dose 3mgs per day with aim of INR between 2 and 3
- Panadol / paracetamol PRN (when needed or Per Required Need
- Digesic – also PRN
I have just recovered from a 5 week bout of some bug / virus. I did have fluvax including swine flu so am assuming it’s neither of those. However I don’t recall ever being so sick. I had ear infection, mouth ulcers, headache, sore throat, fever, sweats, cough, phlegm, clogged sinuses (I have no idea how any one persons body can produce so much phlegm / snot – incredible!). I was coughing so much it seems I even broke a rib and pulled some muscles / tore ligaments etc – very painful.
BUT now I am feeling so much better.
Now my cold etc is over and my ribs aren’t quite as sore and spring has sprung and the weather is warming up, I am going to try to go back to the pool to walk a little, move a little and stretch a little.
“My life is on a restart and I feel better everyday” Yasmin Boland
Until next time